Waterford teen one of ten family members battling rare disorder - FOX 10 News | myfoxphoenix.com

Waterford teen one of ten family members battling rare disorder

Posted: Updated:
WATERFORD, Mich. (WJBK) -

The Waterford community is rallying around a teenager with a rare genetic disorder. Ryan McMann, 18, needs a life saving bone marrow transplant. Sunday, a bowling fundraiser was held at Airway Lanes in Waterford.

Click on the video player to watch Robin Schwartz's report.

The Waterford Kettering senior has a rare disorder called X-Linked Lymphoproliferative Disease or XLP. He's one of ten family members, all male, including his grandfather and cousins, who have the genetic mutation. The family is believed to be the largest group of family members in the world with the disease. Doctors say a bone marrow transplant is the only cure.

"I was diagnosed 2 years ago after word got around the family that we had a genetic disease that compromised our immune systems," McMann told Fox 2.

"We're blessed that the boys are doing well," added his mother, Lisa Angona. "In other XLP families they don't survive."

Right now, Ryan is being treated at U-M Mott Children's hospital in Ann Arbor. The fundraiser was held to help cover his medical costs and to encourage people to sign up for the bone marrow registry. A donor must be 18-60 years old and in good health. Doctors say the bone marrow replaces itself in four to six weeks. Click HERE to learn more about bone marrow donation.

"It's nice that all these people genuinely cared enough to come," said Sierra Janette, one of the volunteers. "Even if they just donated a couple of dollars it still helps out so much and it makes you feel good inside."

Click HERE if you would like to donate to Ryan's medical fund

The family says they're overwhelmed by the support and hopeful about finding the right match for Ryan. If all goes well, he hopes to have the transplant this summer and attend college within a year following the procedure. His classmates have no doubt and they're cheering him on.

"His outlook is amazing," said classmate Jake Plautz. "Every day he come into class with high spirits there's nothing that can stop that kid."

"I feel like I'm gonna get through this," McMann added with a smile. "I couldn't be anymore positive now having all these people back me."

  • Local NewsLocal NewsMore>>

  • Van Dyke Construction Scheduled Today

    Van Dyke Construction Scheduled Today

    Monday, April 21 2014 3:48 AM EDT2014-04-21 07:48:59 GMT
    A massive construction project is underway in Macomb County. If you travel on Van Dyke, you know how rough it is. Now, jackhammers are out there tearing up a two-and-a half mile stretch from 11 Mile to Chicago Rd. The road will be milled, then resurfaced with asphalt. New curbs will be installed. Nine intersections get new traffic signals. Sidewalks will be ramped to comply with the Americans with Disabilities Act. Weather permitting, the project will be finished this summer.
    A massive construction project is underway in Macomb County. If you travel on Van Dyke, you know how rough it is. Now, jackhammers are out there tearing up a two-and-a half mile stretch from 11 Mile to Chicago Rd. The road will be milled, then resurfaced with asphalt. New curbs will be installed. Nine intersections get new traffic signals. Sidewalks will be ramped to comply with the Americans with Disabilities Act. Weather permitting, the project will be finished this summer.
  • Chrysler Expanding Presence in China

    Chrysler Expanding Presence in China

    Monday, April 21 2014 3:32 AM EDT2014-04-21 07:32:50 GMT
    Fiat and Chrysler announced plans this weekend to build three new Jeep models in China for that market, the biggest for the vehicles outside the United States, as they attempt to boost sales in a country where they lag behind their competitors. The automakers said they will expand their joint venture with China's Guangzhou Automobile Group Co. Ltd., and increase the portfolio of Jeeps, which are currently imported to China. Production is expected to start in late 2015.
    Fiat and Chrysler announced plans this weekend to build three new Jeep models in China for that market, the biggest for the vehicles outside the United States, as they attempt to boost sales in a country where they lag behind their competitors. The automakers said they will expand their joint venture with China's Guangzhou Automobile Group Co. Ltd., and increase the portfolio of Jeeps, which are currently imported to China. Production is expected to start in late 2015.
  • Ford at the Beijing Auto Show

    Ford at the Beijing Auto Show

    Monday, April 21 2014 3:27 AM EDT2014-04-21 07:27:48 GMT
    Ford Motor Co. on Sunday unveiled a new Escort sedan designed in China for global sale at a Beijing auto show that highlighted the growing influence of Chinese tastes on the industry. Automakers are looking to China's biggest auto show this year to help boost sales in this huge but cooling market. Total sales last year reached 17.9 million vehicles, but growth is expected to slow from 15.7 percent to as low as 8 percent, even as newcomers including Lincoln and Tesla enter the market.
    Ford Motor Co. on Sunday unveiled a new Escort sedan designed in China for global sale at a Beijing auto show that highlighted the growing influence of Chinese tastes on the industry. Automakers are looking to China's biggest auto show this year to help boost sales in this huge but cooling market. Total sales last year reached 17.9 million vehicles, but growth is expected to slow from 15.7 percent to as low as 8 percent, even as newcomers including Lincoln and Tesla enter the market.
  • Robin SchwartzRobin SchwartzMore>>

  • Documents show GM delayed recall of Saturn Ion

    Documents show GM delayed recall of Saturn Ion

    Sunday, April 20 2014 7:39 PM EDT2014-04-20 23:39:37 GMT
    Government documents show General Motors waited years to recall nearly 335,000 Saturn Ions for power steering failures despite getting thousands of consumer complaints and warranty repair claims. The documents, posted on the NHTSA's website Saturday, show yet another delay by GM in recalling unsafe vehicles.
    Government documents show General Motors waited years to recall nearly 335,000 Saturn Ions for power steering failures despite getting thousands of consumer complaints and warranty repair claims. The documents, posted on the NHTSA's website Saturday, show yet another delay by GM in recalling unsafe vehicles.
  • Judge sentences man whose daughter died in raid

    Judge sentences man whose daughter died in raid

    Friday, April 18 2014 6:12 PM EDT2014-04-18 22:12:36 GMT
    A Detroit man whose daughter was accidentally killed by police during a raid has been sentenced to 40 to 60 years in prison for second-degree murder in the fatal shooting of a teenager.
    A Detroit man whose daughter was accidentally killed by police during a raid has been sentenced to 40 to 60 years in prison for second-degree murder in the fatal shooting of a teenager.
  • FOXe report: Smart meter concerns

    FOXe report: Smart meter concerns

    Thursday, April 17 2014 10:53 AM EDT2014-04-17 14:53:23 GMT
    DTE Energy crews have installed smart meters, or advanced meters, on 1.5 million homes across Michigan. The new meters are an advancement in technology and can be read remotely by radio signals, but some homeowners say the meters are intrusive and dangerous.
    DTE Energy crews have installed smart meters, or advanced meters, on 1.5 million homes across Michigan. The new meters are an advancement in technology and can be read remotely by radio signals, but some homeowners say the meters are intrusive and dangerous.
  • Download the FOX 2 Apps


  • FOX 2 News Five-Day Forecast
Powered by WorldNow

KSAZ-TV & KUTP
511 W. Adams St.
Phoenix, AZ 85003

Phone: (602) 257-1234
Fax: (602) 262-0177

Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices