Waterford teen one of ten family members battling rare disorder - FOX 10 News | myfoxphoenix.com

Waterford teen one of ten family members battling rare disorder

Posted: Updated:
WATERFORD, Mich. (WJBK) -

The Waterford community is rallying around a teenager with a rare genetic disorder. Ryan McMann, 18, needs a life saving bone marrow transplant. Sunday, a bowling fundraiser was held at Airway Lanes in Waterford.

Click on the video player to watch Robin Schwartz's report.

The Waterford Kettering senior has a rare disorder called X-Linked Lymphoproliferative Disease or XLP. He's one of ten family members, all male, including his grandfather and cousins, who have the genetic mutation. The family is believed to be the largest group of family members in the world with the disease. Doctors say a bone marrow transplant is the only cure.

"I was diagnosed 2 years ago after word got around the family that we had a genetic disease that compromised our immune systems," McMann told Fox 2.

"We're blessed that the boys are doing well," added his mother, Lisa Angona. "In other XLP families they don't survive."

Right now, Ryan is being treated at U-M Mott Children's hospital in Ann Arbor. The fundraiser was held to help cover his medical costs and to encourage people to sign up for the bone marrow registry. A donor must be 18-60 years old and in good health. Doctors say the bone marrow replaces itself in four to six weeks. Click HERE to learn more about bone marrow donation.

"It's nice that all these people genuinely cared enough to come," said Sierra Janette, one of the volunteers. "Even if they just donated a couple of dollars it still helps out so much and it makes you feel good inside."

Click HERE if you would like to donate to Ryan's medical fund

The family says they're overwhelmed by the support and hopeful about finding the right match for Ryan. If all goes well, he hopes to have the transplant this summer and attend college within a year following the procedure. His classmates have no doubt and they're cheering him on.

"His outlook is amazing," said classmate Jake Plautz. "Every day he come into class with high spirits there's nothing that can stop that kid."

"I feel like I'm gonna get through this," McMann added with a smile. "I couldn't be anymore positive now having all these people back me."

  • Local NewsLocal NewsMore>>

  • M-1 rail project to begin

    M-1 rail project to begin

    Tuesday, July 22 2014 8:31 AM EDT2014-07-22 12:31:11 GMT
    Woodward Avenue in downtown Detroit will soon be shut down for four months.
    Woodward Avenue in downtown Detroit will soon be shut down for four months.
  • Recalled: Fresh fruits sold at Trader Joe's, Costco & Sam's Club

    Recalled: Fresh fruits sold at Trader Joe's, Costco & Sam's Club

    Tuesday, July 22 2014 7:37 AM EDT2014-07-22 11:37:54 GMT
    A California company is recalling fresh fruits nationwide due to possible listeria contamination.
    A California company is recalling fresh fruits nationwide due to possible listeria contamination.
  • Pensioners approve Detroit bankruptcy plan

    Pensioners approve Detroit bankruptcy plan

    Monday, July 21 2014 11:39 PM EDT2014-07-22 03:39:04 GMT
    The city of Detroit says workers and retirees have approved pension cuts, a crucial step to emerging from the largest municipal bankruptcy in U.S. history. The city reported results Monday after two months of balloting ended July 11. A judge still must hold a trial to determine if Detroit's overall bankruptcy plan is fair and feasible, but support from retirees is vital.
    The city of Detroit says workers and retirees have approved pension cuts, a crucial step to emerging from the largest municipal bankruptcy in U.S. history. The city reported results Monday after two months of balloting ended July 11. A judge still must hold a trial to determine if Detroit's overall bankruptcy plan is fair and feasible, but support from retirees is vital.
  • Download the FOX 2 Apps


  • FOX 2 News Five-Day Forecast
Powered by WorldNow

KSAZ-TV & KUTP
511 W. Adams St.
Phoenix, AZ 85003

Phone: (602) 257-1234
Fax: (602) 262-0177

Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices